HARRIET HARRISON-ONE DAY AT A TIME

                                                                           1969  Today is Oct 20th 2020.  I haven't written on this blog for three years....

http://kybeadmaker.blogspot.com/2020/10/is-oct-20th-2020.html

Today, well actually yesterday since it's 2 am, two different friends came to see me.  It was such good medicine.  One of them came at my request to look at my new art and help me decide what ...

http://kybeadmaker.blogspot.com/2017/03/friends.html

I decided when I was diagnosed with pulmonary fibrosis that I wasn't going to keep my feelings to myself.  When someone has a life ending disease, everything changes. ....in oh so many ways . �...

http://kybeadmaker.blogspot.com/2017/01/honesty.html

Tonight I discovered that even with an oxygen concentrator I do not have enough oxygen to change the sheets on my own bed.

http://kybeadmaker.blogspot.com/2016/12/hard-lessons.html

As of Wed last week I have completed every test.  I lost 10 pounds and I am now officially on THE LIST.  It's weird waiting for a transplant because you know in order to live someone else will...

http://kybeadmaker.blogspot.com/2016/12/random-thoughts.html

It' s this kind of day.                                                                                                              ...

http://kybeadmaker.blogspot.com/2016/11/me.html

I have now completed every test, Xray, scan, and procedure for my transplant evaluation, except the colonoscopy......oh how I hate that one!  I went to Florida last week to tell my mom about th...

http://kybeadmaker.blogspot.com/2016/10/update-2_31.html

The heart cath went ok, except for the fact that a resident left a bruise on my arm that is of  humongous size. Got more info from my transplant coordinator after spending two hours learning ab...

http://kybeadmaker.blogspot.com/2016/10/update.html

Tomorrow is heart cath day.....scary!  I have a friend that had one and she says it's a piece of cake because the drugs they give you make it so you don't care.......hoping this is true.  Havi...

http://kybeadmaker.blogspot.com/2016/10/heart-cath.html

On Monday I had my first meeting with the  transplant team.  They are very specific about what will and will not happen.  The oldest person they have transplanted lungs into was 73 at the tim...

http://kybeadmaker.blogspot.com/2016/09/first-transplant-meeting.html

 So much has happened in the last month.  I went for my check up with my pulmonologist about a month ago.  My numbers were down, meaning my lungs are not functioning as well as they were sinc...

http://kybeadmaker.blogspot.com/2016/09/it-begins.html

WOW, can I procrastinate or what?  My poor little blog has just been sitting here and I have been ignoring it.  However, circumstances in my life have slowed me down, so I will probably be wri...

http://kybeadmaker.blogspot.com/2016/08/some-days-i-am-just-slug.html

I love this sign and I love all the people who do this.  Blessings in the New Year to each and everyone of you.                        

http://kybeadmaker.blogspot.com/2015/12/happy-new-year.html

A year has already gone by.  It was last November when I was diagnosed with Pulmonary Fibrosis.  I think I spent the first three months in shock, maybe longer, maybe I still am, in shock, that...

http://kybeadmaker.blogspot.com/2015/11/reality.html

Tomorrow is my oldest child's 44th birthday. How can this be?  Where did all that time go?  I know I put her to bed just a short time ago.  I watched her sleep with those little brown curls ...

http://kybeadmaker.blogspot.com/2015/09/timer.html

I love this poster, saw it on Facebook today.  This kind of describes my life the last 10 months.  I finally feel like I have a good doctor, who cares about me.  Since Jan. I have been taking...

http://kybeadmaker.blogspot.com/2015/09/it-is-what-it-is.html

I am probably the world's worst blogger.  Since my last post Sara has been in the hospital twice with a shunt malfunction.  Hank was in once with double vision, and I have stayed away from bei...

http://kybeadmaker.blogspot.com/2015/06/silence-explained.html

Found this on Facebook.  Love it!!

http://kybeadmaker.blogspot.com/2015/04/so-true.html

Since I wrote last my sweet Sara has been in the hospital twice,with a possible shunt malfunction and an UTI.  Her shunt was repaired, but we are sitting on a time bomb because her shunt is 32 ...

http://kybeadmaker.blogspot.com/2015/04/and-so-it-goes.html

I saw this on Facebook

http://kybeadmaker.blogspot.com/2015/03/words-of-wisdom.html

This is probably a boring post but it is what has consumed me lately.  This past month has revolved around obtaining medication.  I was put on a drug called Esbriet.  It doesn't stop Pulmonar...

http://kybeadmaker.blogspot.com/2015/02/time-to-catch-up.html

The pills arrived today.  I hope this is truly a new beginning for my poor lungs.  They won't stop pulmonary fibrosis, but their job is to slow the process down, until a drug that stops the di...

http://kybeadmaker.blogspot.com/2015/01/a-hopeful-beginning.html

Since I couldn't be in the drug trial I've been waiting to see if I could get one of the two  drugs available that slow the disease process down.  I was told it was $30,000 a year.  Assistanc...

http://kybeadmaker.blogspot.com/2014/12/news-i-did-want-to-hear.html

On a lighter note, I saw this on Facebook today.  Cracked me up :)  Perfect and so true, and I feel so much better when something makes me laugh.

http://kybeadmaker.blogspot.com/2014/12/funny.html

Today I found out that I don’t qualify for the drug trial for the new drug for Pulmonary Fibrosis.  The reason is frustrating, both to me and my doctor.  I had two CT scans that determined t...

http://kybeadmaker.blogspot.com/2014/12/news-i-didnt-want-to-hear.html