ALS/MND Support Group Forums

I am curious if anyone has done salivary ablation for excess saliva. I'm about to go out of my mind with this issue. I have been taking taking Botox injections for it, unfortunately they don't la...

https://www.alsforums.com/community/threads/salivary-ablation.53890/?utm_source=rss&utm_medium=rss

Unfortunately on the 26th March this year I was diagnoses with ALS / MND we call it in the UK. I've been on here a few time. First in 2016 when my twitches started mostly in my legs and calf. T...

https://www.alsforums.com/community/threads/has-anyone-on-here-been-diagnosed-with-als-but-turned-out-to-be-lyme.53880/?utm_source=rss&utm_medium=rss

Brief summary, 34 Y/O male, about a year ago I noticed I had weakness in my right pointer finger while using the mouse, I also have had difficulty with things like squeezing tubes (like toothpast...

https://www.alsforums.com/community/threads/recent-neurology-visit.53893/?utm_source=rss&utm_medium=rss

I am 40 years old, and a veteran athletes. Approximately 15 years before now I had a neck trauma which has always been painful when tilt my head backward. About 3 years after the injury to my nec...

https://www.alsforums.com/community/threads/15-years-of-neck-pain-als.53892/?utm_source=rss&utm_medium=rss

Hello! I’ve had some strange symptoms that I’m concerned about it. The front right side of my tongue curls up when I stick it out and hold it in a semi-relaxed position while smiling. The fro...

https://www.alsforums.com/community/threads/bulbar-onset.53891/?utm_source=rss&utm_medium=rss

Good afternoon Everyone. I'm so glad this forum exists. It's so important to anyone with ALS, My close friend who I've been a caregiver for, has had ALS for many years. Some folks like him are pr...

https://www.alsforums.com/community/threads/best-friend-has-als-can-hardly-talk.53860/?utm_source=rss&utm_medium=rss

First and foremost, I want to express my gratitude to the moderators for their unwavering support and guidance, especially in times of uncertainty and fear. Your dedication truly makes a differen...

https://www.alsforums.com/community/threads/health-provider-fear-of-als.53872/?utm_source=rss&utm_medium=rss

Hello ! I (M21) have read all of the 'read before posting' post and it calmed me down a lot to be honest. But I still have some questions about my recently done EMG. It was done at the end of f...

https://www.alsforums.com/community/threads/question-about-my-emg.53889/?utm_source=rss&utm_medium=rss

Hello, I started having progressive muscle weakness on my left side. I didn’t notice it at first I thought I was just having trouble walking. I went to the doctor and it was found that my lef...

https://www.alsforums.com/community/threads/als-or-neuropathy.53888/?utm_source=rss&utm_medium=rss

Hello everyone! I’m a 25 years old M. I read the sticky post about major initial symptoms but there is one of them which I didn’t see reported although I saw it in some health sites, diagnosi...

https://www.alsforums.com/community/threads/fatigue-as-early-sign.53879/?utm_source=rss&utm_medium=rss

I have had some issues crop up with my tongue. My tongue feels sore at the back (more like an ache) and I feel like I’ve developed a slight lisp (s and sl noise sounds like it’s making an air...

https://www.alsforums.com/community/threads/worried-about-bulbar.53870/?utm_source=rss&utm_medium=rss

. now on to chapter 2...] The AirCurve 10 ST-A that we purchased out of pocket was finally delivered on Monday. I had to chase the UPS truck around the neighborhood to retrieve it, due to a mis...

https://www.alsforums.com/community/threads/mis-adventures-in-bipap-a-newbies-journal.53837/?utm_source=rss&utm_medium=rss

Our son, 38 years old, has ALS. He is single and lives an hour away from us in Philadelphia. We are trying to help him as much as we can, but we are in our mid seventies and live in a continuing ...

https://www.alsforums.com/community/threads/how-do-single-als-patients-cope-with-effects-of-illness.53887/?utm_source=rss&utm_medium=rss

Hi everyone. Thank you for this blog, it has been really helpful. I’m an 29 year old male. About a month ago, I started getting twitching all over. Most of the twitching has occurred in my l...

https://www.alsforums.com/community/threads/just-nervous.53776/?utm_source=rss&utm_medium=rss

Let me start by saying that I have read the pinned post and I greatly appreciate the information provided here and the time you all are taking to try to provide what information you can for those...

https://www.alsforums.com/community/threads/just-met-with-my-family-doctor.53874/?utm_source=rss&utm_medium=rss