My friend Dr. Tom Marsilje wears a number of hats–devoted parent, dedicated scientist, cancer patient and absolutely amazing advocate/activist. Tom holds a special place in my heart and persona...
https://outlivinglungcancer.com/2016/10/12/the-downstream-effect-of-two-miracles-of-science/
By last weekend my GI tract had returned to what now passes for normal, and I was ready to get back in the game. Pete shipped up north for a dance at his former school and then on to a … Contin...
I have a newly developed and profound sense of respect for my liver. The AST/SGOT is down to 53 (normal range is 7-30) and my ALT(SGOT) is 43 (normal range is 9-32). This constitutes a mild but e...
https://outlivinglungcancer.com/2012/03/06/the-numbers-look-good/
One more week off drug. My enzymes continue their descent, with the AST/SGOT now in the realm of normal with a value of 41 and the ALT/SGPT at 100. It’s the ALT that needs to come down more, bu...
I was discharged Sunday. Six pounds lighter and pretty darn worn out after my adventure, but happy to be home. I am back on the antibiotic levaquin, my persistent cough is finally abating and Dav...
https://outlivinglungcancer.com/2012/02/23/a-bit-too-close-to-the-edge/
First to the heart, and then to the gut. Last Thursday, undone by the passing of yet another friend, I was given the go ahead to get back on prozac. I’d made it four months without chemical sup...
https://outlivinglungcancer.com/2012/02/16/one-two-punch-medical-and-emotional-update/
Wednesday morning, September 7th. Lead in dose of LDK 378 and dressed for success. It was a long day (eleven hours not including the commute), but went quite well. Per trial protocol, I return...
On Friday, August 26th; crizotinib received FDA approval. It is now called Xalkori. Nice little features on both the ABC (scroll down to find Xalkori) and NBC evening news a couple of nights a...
https://outlivinglungcancer.com/2011/09/01/fda-approval-for-crizotinib-and-a-new-name-xalkori/
I had a message from Beryl, Guillermo’s wife, this morning. Guillermo Berazadi passed away on Wednesday morning July 13th. His wife and two daughters were by his side. Although I have known for...
https://outlivinglungcancer.com/2011/07/16/a-scan-and-a-plan-but-first-a-tribute/