life and breath: outliving lung cancer » Clinical Trials

First, a proposal. All you clinical trial sponsors, listen up. I really feel that upon enrollment in a clinical trial, each participant should be assigned a case manager as a perk of participatio...

https://outlivinglungcancer.com/2018/09/01/for-the-record-my-contribution-to-medical-research/

You have no idea what’s going on in my head. Really. And, nor do they–the authorities. That’s an MRI of my brain, demonstrating gadolinium deposition secondary to injected contrast. It is t...

https://outlivinglungcancer.com/2018/08/29/the-down-the-dirty-the-skinny-the-scat/

Let me start by saying my last scans showed continuing stability. Fifty (50!) months and counting; thank you lorlatinib. And then, a salient detail per those last scans. I walked out on my brain ...

https://outlivinglungcancer.com/2018/08/09/baller/

Happy Day; this one’s ours. Like all holidays, it feels a bit bittersweet. A reminder of good times but also bad. Four years ago I took my first dose of lorlatinib (image from that momentous oc...

https://outlivinglungcancer.com/2018/05/13/for-all-you-tough-mothers-out-there/

Earlier this week I made my morning cup of coffee immediately upon rising, just as I always do. But then I couldn’t find it. Anywhere. And I live in a one room loft. I also left my eyeglasses a...

https://outlivinglungcancer.com/2017/04/05/losing-it/

Last week Lungevity hosted the Scientific and Clinical Research Roundtable in DC and I was invited to be the keynote speaker. Really. I could be wrong but I have a sneaking suspicion that most o...

https://outlivinglungcancer.com/2016/10/03/when-noncompliance-is-your-best-option/

This video was recorded at the annual LUNGevity Hope Summit in 2014 and fits in perfectly with the theme of clinical trials. When I refer to starting a new trial, it is for PF-06463922 or lorlata...

https://outlivinglungcancer.com/2015/12/08/linnea-live-i-like-the-sound-of-that/

Some of you may be wondering where that nice girl Linnea went. Well, beneath my relatively calm, cool facade lurks someone who simply won’t stand down if I feel there is something that can be d...

https://outlivinglungcancer.com/2015/12/06/soldier-in-the-war-against-cancer/

For all but one of the past seven years I have served as a peer reviewer for the CDMRP. It is perhaps the toughest form of advocacy that I have undertaken but also one of the most rewarding. I ne...

https://outlivinglungcancer.com/2015/12/05/dear-pharma/

Alright, I’ve been really damn quiet again. I’ll get to this later, but my current therapy has come with a lot of cognitive side effects. Memory loss, a bit of accompanying confusion and fran...

https://outlivinglungcancer.com/2014/11/18/time-for-grace/