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- Feed Preview Phoenix Rising
May 12, 2023 Is International ME/CFS Awareness Day
by Jody Smith This year marks 31 years since Thomas Hennessy, Jr. decided that May 12th would be our ME/CFS International Awareness Day. May 12th had been the birthday of army nurse and Red Cross...
Dr. Nina Muirhead: ME Patient and Advocate in the UK
By Bronc Dr. Nina Muirhead is a dermatology surgeon and founding member of Doctors for ME in the UK. Since developing ME in 2016 she has done a lot to promote awareness of the disease writing and...
Dr. Suzanne Vernon: 25 Years of Trying to Crack the Case of ME/CFS
For over 25 years, Dr. Suzanne Vernon has been trying to crack the case of myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS). Image courtesy of Dr. Suzanne Vernon. by Bronc I first fel...
Understanding Autoimmunity in ME/CFS
By Bronc and Eric Pyrrhus For many decades now, people with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) across the world have had to deal with medical establishments wedded to in...
Long COVID in Mexico: Isolation and Disbelief
Versión en español • Versão em português By Eric Pyrrhus César Medina climbed mountains, lifted weights, and was an avid cyclist. He had a good job. He had a partner. But everything change...
Dr. Natalie Eaton-Fitch Discusses Repurposed Drugs and the Treatment of Myalgic Encephalomyelitis (ME)
By Bronc In the world we live in people are suffering from all kinds of illnesses, which require a variety of different medications to treat them. Often, the road to finding a novel medication fo...
Scientific Findings Distinguish Between Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
By Bronc People living with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) are definitely not “just a little tired.” But they are indeed tired of some things — such as dealing...
Part 3: The Missing Voices Speak Up in Mexico
In the last of a three-part series, people with neuroimmune diseases in Mexico speak up about the wide-ranging consequences of the disease on their life. If you haven’t already read the first p...
Part 2: The Challenge of Standing up for Patients in Mexico
In the second of a three-part series, people describe the challenges of pursuing fundamental rights for patients with neuroimmune diseases in Mexico. If you haven’t already read the first part ...
Part 1: Millions Missing in Mexico
In the first of a three-part series, people describe the challenges of living with neuroimmune diseases in Mexico. The science of these diseases is also discussed, and we try to understand why th...
A Call to Arms: 30th Anniversary of International ME/CFS & Fibromyalgia Awareness Day
by Jody Smith May 12th is a special day in the ME/CFS community. It was English army nurse Florence Nightingale’s birthday. In 1992 Thomas Hennessy, Jr. thought her birthday would be a fitting ...
What It Is To Be Human: Holobionts and the Microbiology of Myalgic Encephalomyelitis
By Bronc Dr. Amy Proal, of the PolyBio Research Foundation, is a microbiologist interested in the molecular mechanisms by which bacterial, fungal and viral pathogens dysregulate human gene expres...