The public and health research

We are united. We are divided. We are together. We are isolated. We are community. We keep our distance. What strange and anxiety-inducing existence is this? We spend our days and nights in two p...

https://simondenegri.com/2020/03/29/a-tale-of-two-viruses-covid-19-and-community-engagement-and-involvement-in-a-time-of-national-crisis-inc-links-coronavirusuk/

Many patients and their families fighting for the right care or seeking redress for wrong-doing will eventually find a regulator in their way. It takes courage, a strong heart and much tenacity t...

https://simondenegri.com/2019/08/06/it-says-something-when-even-the-regulators-get-hold-of-public-involvement-mhragovuk-hra_latest/

Privacy campaigners have reacted with concern to the announcement by Health Secretary, Matt ‘Prime Membership’ Hancock, that the NHS and Amazon have done a deal to provide health advice throu...

https://simondenegri.com/2019/07/12/a-conversation-with-alexa-about-public-involvement-in-health-sorry-i-dont-know-that-one-digitalppi/

Hot on the heels of a glorious Glastonbury weekend and its sumptious selection of the best in music (apart from Chris Martin that is, who is is just a pain in the backside) I have decided that I ...

https://simondenegri.com/2019/07/03/downloadable-definition-of-the-impact-of-public-involvement-in-health-research-feat-patients-carers-and-the-public/

You don’t have to worry about blinking and missing something in UK research if you are a patient. No. You could probably have a metaphorical afternoon nap. Or whole night’s sleep. Perhaps eve...

https://simondenegri.com/2019/06/17/getting-research-results-should-be-blinkin-easy-for-patients-survey-launched-by-hra_latest/

The UCL Centre for Co-production in Health Research has issued a call for new pilot projects. It is looking for collaborators (organisations or groups of individuals) who are interested in deli...

https://simondenegri.com/2019/05/10/ucl-centre-for-co-production-in-health-research-issues-call-for-new-pilots-10-15k-available/

Breaking News: ‘Avengers’ moviegoers in California may have been exposed to measles So said the CNN headline scrolling at the foot of the TV screen in my Montreal hotel bedroom last week. The...

https://simondenegri.com/2019/05/08/avenging-the-measles-outbreak-requires-local-heroes-not-superheroes/

This blog was originally inspired by a passing reference I saw in a research proposal. In talking about their plan for public involvement the applicants referred to a ‘Senior Academic Lead for ...

https://simondenegri.com/2019/04/16/musings-on-the-role-of-senior-academics-in-supporting-public-involvement-in-health-research-in-universities-and-institutions/

Should we have a meaningful vote on the definition of public involvement in health research? Better still a series of indicative votes to find the most preferred definition? Perhaps it would be s...

https://simondenegri.com/2019/03/26/should-we-have-a-meaningful-vote-on-the-definition-of-public-involvement-in-health-research/

‘I was averaging out at two meetings about digital per week before Christmas,’ said my friend over coffee. As she said it I mused to myself that it must be at least one a day by now. Yes, 201...

https://simondenegri.com/2019/02/15/whats-this-screwed-up-ball-of-paper-got-to-do-with-health-data-research-read-on/