>> >> >> Ellie between surgeries. It's been an unexpected roller coaster of a 2023 so far. In November of 2022, 9 days after Ellie's 20th birthday, her shunt failed. She'd had it ...
http://ryntales.blogspot.com/2023/03/shunt-revisions-learning-to-live-on.html
The population has outgrown the infrastructure in the United States. What do I mean by that? Quite simply, doctors predicted that the population of disabled children would not make it to adul...
http://ryntales.blogspot.com/2022/09/transitions-and-systemic-challenges.html
Hi everyone, Ellie's new glasses As I write I can't help but wish health, safety, and happiness to all. It's been a hard time for many as the pandemic continues on and climate change wrea...
http://ryntales.blogspot.com/2021/12/happy-holidays-and-new-year.html
Hi Everyone, We are still here and all vaccinated with Moderna. Because of Ellie our whole household and her carers were all able to get vaccinated. Dave and I are classified as "in home unpa...
http://ryntales.blogspot.com/2021/04/2021-check-in-be-in.html
Hi Everyone, Checking in. We are ok - COVID-free so far. We are pretty much trying to shelter in place as it'd be bad if Ellie got the virus. She eats by mouth but a teaspoon at a time. A 1/2 ...
http://ryntales.blogspot.com/2020/07/2020-post-covid-19-edition.html
It's been roughly over a 2 months since we were in the ER on New Year's Eve wondering what the future would bring...wondering if she would still be here...still be whole...still be her sparklin...
http://ryntales.blogspot.com/2019/03/ellies-miraculous-healing-powers-shunt.html
Ellie in the ED 12/31/18 Hi Everyone, I thought 2018 was a rough year. 2019 came in before the ball even dropped and decided it was going to get real. We spent the better part of Decembe...
http://ryntales.blogspot.com/2019/01/inter-ventricular-shunt-discontinuity.html
Hi Everyone, Ellie Prom 2018 Ellie turned 16 two weeks ago and I can hardly believe it. Because she is 16 we are thinking a lot about what they call in this country - transition. For spe...
http://ryntales.blogspot.com/2018/11/because-her-life-depends-upon-it.html
Ellie is working on driving her electronic wheelchair. We hope to get to bring it home this summer! Copyright of Ryntales.blogspot.com, 2006, 2007, 2008, 2009, 2010, 2011, 2012, 2013. All ri...
Hi. Back from my surgery - new hip installed. Very unhappy to find out the technology did not include iron man type capabilities or even Wifi, but then again my bar was set pretty low. It's been...
Ellie practicing her sitting at PT Hi Everyone, It's been awhile. Where to start...Ellie is doing great. She's healthy, happy, and very 15. She got Taylor Swift's new album "Reputation" fo...
http://ryntales.blogspot.com/2018/01/happy-2018-and-ellie-is-15.html
New Year's Eve 2015: Ellie and Mama and Serafina Hi Everyone, As usual I have been meaning to write for some time now. Life has been a sleep deprived whir since Ellie had her surgery two ...
DJ Ellie Hi Everyone, It's been awhile as it's been a hard year for us as a family. But that is the content for another post. Suffice to say we are all doing much better and looking happil...
http://ryntales.blogspot.com/2016/05/dj-ellie-ellie-starts-sound-cloud.html
Ellie on her 13th Birthday, November 9 13 13 13! How do I tell you about 13? For the first time this year Ellie let us sing Happy Birthday to her and actually did a happy dance along wit...
http://ryntales.blogspot.com/2015/11/happy-13th-birthday-princess-ellie.html
Copyright of Ryntales.blogspot.com, 2006, 2007, 2008, 2009, 2010, 2011, 2012, 2013. All rights reserved.
http://ryntales.blogspot.com/2015/10/happy-halloween-from-alice-in-wonderland.html
Ellie's left foot and her flexing her toes! On July 22nd Dave took Ellie to get her groovy green casts off. And they did come off revealing no skin issues and beautifully elongated and more ...
http://ryntales.blogspot.com/2015/07/enough-of-hero-talk-please-working.html
This chair if really helping thanks to Liz! Ellie continues to improve every day. The casts on both feet, knee immobilizers and wedge remain until July 22nd at which point we hope the cas...
http://ryntales.blogspot.com/2015/07/sleep-deprivation-and-reslience.html
Ellie asleep yesterday evening. Ellie is resting now and we have a long road ahead of us. She has casts from the knee down to toes on both legs. Within those casts are feet at neutral and st...
http://ryntales.blogspot.com/2015/06/hello-walkable-flat-feet.html
Ellie got the "Independence" Award at school! It's a waiting game right now. Ellie is in surgery and will be for the next 9 hours. They got the PIC line in and the A-line and the epidural an...
Hi Everyone, Thank you to those of you who have written to thank me for sharing our story and to say that in that sharing you found some hidden strength and hope. Hope is a powerful thing afte...
Ellie turned 12 yesterday. I can hardly believe it. And as a nice birthday gift for mama she transformed again in a way that may seem small but was really telling for us. Each year whenever she ...
http://ryntales.blogspot.com/2014/11/happy-twelfth-birthday-princess-ellie.html
Ellie at Advance with Doran and Dada Yesterday a father wrote to me with a lot of questions about his beautiful baby girl Anastasia. Rather than respond in private, since many of his questi...
http://ryntales.blogspot.com/2014/11/for-beautiful-anastasia-questions-and.html
Copyright of Ryntales.blogspot.com, 2006, 2007, 2008, 2009, 2010, 2011, 2012, 2013. All rights reserved.
http://ryntales.blogspot.com/2014/09/pharrells-happy-in-asl-by-deaf-film.html
Paper Jamz Guitar Ellie is firmly into the pre-teen zone of consciousness. She introduces us to popular music on You Tube she finds all on her own. She thinks Katie Perry's Roar is pretty gr...
http://ryntales.blogspot.com/2014/07/life-at-11-purposeful-speech-and-other.html
Ellie having a lavender foot soak on her Winter Break This last 6 months has been a time of intense change for us all and for the better. On October 22nd of 2013 Ellie got her g-tube OUT (fo...
http://ryntales.blogspot.com/2014/01/change-change-change-for-better.html