Decades ago I experienced a year of chronic fatigue due to exposure to an industrial solvent called trichloroethylene. Years ago I was able to find research identifying specific changes which the...
https://www.healthrising.org/forums/threads/microbiome-in-cfs-and-me.6855/
Hi, I was recently diagnoised with ME/CFS. I have gone from a high functioning, very active person, to basically home bound. Are there any medications or supplements that have helped you? I am ...
https://www.healthrising.org/forums/threads/do-any-medications-supplements-help.6806/
I am scheduled for a right sided SGB through Stella in October. I went with the option for $3399 which with cover 2 procedures. They will start on the right with 2 shots at C4 and C6. After that ...
https://www.healthrising.org/forums/threads/stellate-ganglion-block.6713/
Does that make any sense??
https://www.healthrising.org/forums/threads/feel-normal-between-10pm-and-2am.6757/
Diagnosed with ME in 1994, my son suffered from debilitating fatigue, unable to sit up and barely able to talk until 1997, when he was admitted to the National Neurological Hospital, London. Foll...
https://www.healthrising.org/forums/threads/weird-headache-lasting-many-years.6858/
I've noticed over the 8 years of my ME/CFS, the few times I've taken antibiotics for about a twice-a-year UTI, I feel less fatigue. Not every time, but maybe 30% of the time. I don't feel any mor...
@Cort , did you blog about this article? I feel like it would build on your past excellent coverage of this topic: BRAIN FOG IN ME/CFS AND LONG COVID This week our paper about possible caus...
https://www.healthrising.org/forums/threads/brain-fog-in-me-cfs-and-long-covid.6857/
MY HISTORY: web.archive.org/web/20220801072636/https://old.reddit.com/r/HumanMicrobiome/comments/8sv31e/my_detailed_experiences_lessons_from_8_different/ www.youtube.com/watch?v=6wi52tLjCps I...
Orthostatic Intolerance and Low Cerebral Blood Flow Most people with CFS have Orthostatic Intolerance and Low Cerebral Blood Flow. So why do so few people with CFS try to ameliorate these condi...
Interesting study being planned for POTS with Efgartigimod. A monoclonal antibody fragment that binds other antibodies. Think of it like a pharmaceutical immunoadsorption without the extracorpore...
https://www.healthrising.org/forums/threads/drug-study-with-efgartigimod-for-pots.6728/
There is a relatively new method of measuring blood volume – carbon monoxide rebreathing. It is much cheaper and easier than the old way (nuclear isotopes). It is being used at NASA to study ...
https://www.healthrising.org/forums/threads/new-way-of-measuring-blood-volume.6773/
I am the mother of a young woman who has been diagnosed with ME/CFS. Started 10 years ago, after reactive depression followed by excessive physical burnout. IgM EBV ,Parvo and HV improved in fi...
https://pubmed.ncbi.nlm.nih.gov/20523772/ When I went bald, during my late teens, I had no idea that the primary cause of my condition was coeliac disease. That took me decades to learn. I also...
https://www.healthrising.org/forums/threads/could-alopecia-be-as-simple-as-a-zinc-deficiency.6704/
Cort submitted a new resource: Best Chronic Fatigue Syndrome and Fibromyalgia Practitioners - An online review system analysis > We're not exactly overflowing in good chronic fatigue ...
Lately I've been running an activity on my Garmin watch, with an upper limit warning set, to help me pace myself better. I've been amazed at how quickly my heart rate can jump from doing relative...
https://www.healthrising.org/forums/threads/beta-blockers-for-pacing.6821/
Is anyone taking this for ME/CFS Long Covid? What has been your experience? Has anyone had a Stellate Block Treatment? What are your experiences? I had the first block treatment on Monday this...
Cort submitted a new resource: Large Databases for finding ME/CFS and FM doctors - Ways to find ME/CFS and FM Specialists > DATABASES FOR LOCATING CFS/ME PHYSICIANS > > Searchable d...
https://www.healthrising.org/forums/threads/large-databases-for-finding-me-cfs-and-fm-doctors.2190/
Solve ME is discussing a study using hydrogen water to treat ME. I’ve signed up to participate. Here’s some info and a link to join if anyone's interested. https://us02web.zoom.us/webinar/reg...
https://www.healthrising.org/forums/threads/hydrogen-water.6852/